Latest from the Blog
We are in the golden era of CF drug development. Kalydeco, Orkambi, Symdeko, now Trikafta – we have had a lot of wins lately. But we have many members of our community who can’t take these life-changing modulator drugs. Luckily, there are more drugs in the pipeline, including some that I am really excited about!… Continue reading Cystic Fibrosis Drug Development: What I’m Excited About
This is a post that I had planned for way back in May for CF Awareness Month, but a lot happened in May, and things have been in flux with my treatment plan so I was holding off. But here it is: a day of managing cystic fibrosis, cystic fibrosis-related diabetes, asthma, and epilepsy. Yes,… Continue reading Day in the Life: A Comical Collection of Chronic Illnesses
Today’s story is a short one, but it’s a story of a physician who saved my life by keeping his ears open. If you’re new here, I’m a cystic fibrosis patient sharing stories of medical successes and failures in the hopes of giving you something to bring back with you into the hospital and clinic.… Continue reading MedEd Story Time: On Being an Advocate
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